Dementia Diaries

I am adding this link as it has views from many people living with dementia who express their views about a range of different aspects of both living with dementia and "life in general". https://dementiadiaries.org/

Finding Joy

I was apprehensive about going to the show because dementia always seems to be shown in a scarey or negative way. Not using words in Finding Joy was great, because it made the play accessible through not having to following words. The pressure was off in following a plot. When I said I would go …

Things that get me through

A cup of coffee first thing Friends who continue to include me in everything, just like they always have. God will never leave me nor forsake me. Meeting new people Continuing to try out new things Being involved as an Alzheimer's Ambassador Prayers that I say regularly "If not now when?"  I will do it …

Spring Bank Holiday

Coventry had great weather over the Spring Bank Holiday, and we were out and about, at the BBC Biggest Weekend in Memorial Park, with lots of artists including Billy Ocean and Paloma Faith - a couple of my favourites. Despite a downpour around 5.00ish Living well with dementia is important and getting out and about …

A night out

It is always good to have a night out with family, so last night was special as we had booked tickets a long while back as a Christmas present - we were off to see Macbeth. a story of lust for power, treachery and tragedy. Last night Macbeth (Christopher Ecclestone) was quite modern doing press …

Dementia Action Week 2018-so far

Saturday - Learning about Dementia day training - Tick Tuesday - Helping with a course for nursing students, on Dementia Issues - Tick Wednesday -Joined Dementia Voices project and phoned in my first post - Tick

Alzheimer’s is about retaining identity – I am not a different person

I have just watched - this is a phrase that seems to be recurring, as I watch TED talks. This one is by Irish neurologist Dr Jules Montague, who explains about Anita, who has asked her about her diagnosis - "will I still be the same person?". Jules explains that this is not a medical …

Words associated with D

  I borrowed a book the other day from the library. It suggested that the types of words that surround dementia are not necessarily positive. I thought this idea true because it makes the points that I have been grappling with myself for accurate language. The words we use to describe or infer things about …

Just in case you are new to my blog in 2018

I just want to try to pass on what it is like living with dementia as a condition. This is why I want to put on postive things about how the condition has impacted my life, but there are lots of different ways that dementia has made a difference.

PAC Research – not a snappy title!

So here I am at the beginning of another year having recently been down to London for 3 days to do some activities for a research project on "Balance" at UCL.It was exciting to be going to London, but it was very serious as I was part of a cohort that was taking part at …